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Album Review: Wavves – King Of The Beach

September 1st, 2010 by admin

Picture a random house party when everyone’s sitting around at 3 in the morning and the guy who’s sp

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Mom’s update

September 1st, 2010 by admin

I’m glad I checked my blog today because I thought there was a post for today. I didn’t

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Measuring changes during graded exposure & acceptance treatment

August 31st, 2010 by admin

ResearchBlogging.org
I have been pondering about the best way to monitor ‘Matt’s progress during graded exposure therapy for his avoidance of activities involving back movement. I introduced you to Matt yesterday. He’s a ‘man’s man’, a real bloke who, for the past four years since he had surgery for a prolapsed disc, has avoided things like mowing the lawns, making the bed, fishing and whitebaiting and even golf.

Yesterday I described how we went through 100 photographs of activities of daily living, and of these, Matt identified 67 of the photographs as things he wouldn’t do because of his concern about both the impact on his pain and the ‘strain’ on his back.

I have used a simple count of the number of photographs a person decides is in the ‘avoided’ pile as one way to monitor and measure progress, but it’s not an especially revealing measure if I’m wanting to explore the factors that may be influencing this avoidance. After all, there can be several things that can contribute towards avoidance – in Matt’s case, he indicates that he’s worried about experiencing fluctuations in pain intensity, so it could be that one of the factors relevant to him is his catastrophic belief that he ‘can’t cope’ with high levels of pain. Alternatively, it could be due to his belief that pain is an indication that his back is being further damaged. Or it may be because of something that he can’t yet voice, perhaps something that he doesn’t completely identify.

As part of the intake battery of questionnaires, I do already have scores from his Tampa Scale for Kinesiophobia, his Pain Disability Index and Pain Self Efficacy Questionnaire.  The TSK, as I think I might have mentioned at one time, doesn’t always have great predictive value in the case of people who have been well-informed about hurt vs harm.  The TSK has two subscales, one is about activity avoidance while the other is somatic awareness – but I’m guessing that for people who have information about hurt vs harm, the somatic awareness subscale doesn’t tap into the concerns that these people have. Maybe this is because they’re not exactly sure what is driving their tendency to avoid (remember that questionnaires are not x-rays of the mind! They can tell you anything more than what the person will tell you, so if someone is unaware of their beliefs, a questionnaire won’t reveal it either).

The Pain Disability Index is a fairly broad measure of perceived disability on 10 areas of function.  It’s well validated and used widely – but it’s not especially sensitive to change during treatment, and it doesn’t measure details about how the person goes about their activities.  What this means is people who use subtle avoidance behaviours, or safety behaviours, may not score particularly high on the measure, despite having constrained their participation in many of their normal activities.

The Pain Self Efficacy Scale looks at confidence to carry out activities despite pain – and so should be a reasonable measure especially in people who are avoiding activities because of lack of confidence.  The problem in Matt’s case is that he doesn’t lack confidence – he just doesn’t believe it’s good for him to carry out movements that hurt, and so he doesn’t.  He still manages to get activities done – but the way he carries them out continues to perpetuate his belief that he shouldn’t move his back too much.

The work that is being undertaken using acceptance and commitment therapy (ACT) has identified another dimension or construct that could be important to measure.  There are two major constructs that ACT considers important: the willingness to carry out activities despite discomfort or negative feelings or thoughts; and ‘cognitive fusion’, where along with the words we use to describe events or situations, we also experience the emotions and sensations – as if the words and the construct that is being described by the words are one and the same.  So we believe that ‘pain’ (the sensation) isn inevitably and always ‘bad’ – even though there are times when experiencing pain is not bad (like that wonderful feeling after you’ve been out for a long walk and come home ‘tired but happy’ and a little footsore, or that lovely pulling pain that you feel when you stretch).  As so many researchers have pointed out, it’s not the pain itself that’s bad – it’s the meaning of the pain and the fear that pain represents something threatening that is the problem.

To be willing to do activities despite discomfort (negative feelings etc) in the pursuit of living out important values is one of the most important constructs that clinicians working in chronic pain management try to modify.  We constantly ask the people we work with to experience ‘some’ pain while starting to return to activity.  It might not be a lot of pain, but regaining function almost inevitably means some fluctuations in pain and usually it gets a little more uncomfortable before we habituate to it.  It’s a bit surprising, then, to find that a measure of ‘willingness’ or ‘acceptance’ is not commonly used.  There are two questionnaires at least that I know of that could be helpful in this regard – the first is the Chronic Pain Acceptance Questionnaire, by McCracken and colleagues (2004) – this is a measure that has been found to have two subscales: activities engagement and pain willingness.

The second is a new one that forms part of the Psychological Inflexibility in Pain Scale (PIPS), developed by Wicksell, Lekander, Sorjonen and Olsson (2010).  This questionnaire has, like the CPAQ, two subscales – avoidance and cognitive fusion.

In the paper I’ve referred to, this has been used in a large study of 611 participants with neck pain following whiplash.  It correlates well with the CPAQ, and the TSK, and explains more variance than the TSK in things like pain, disability, life satisfaction and depression.  It’s also been found to mediate the relationship between pain and disability, and the authors suggest that it may be useful measure to use during therapy, to monitor progress.

I’m hoping to take a further look at this scale, and with Matt’s permission, I hope to use it during his treatment.  I think it could well measure some of the most important aspects of his presentation because it doesn’t look as much into fear of harm, but more about how much thoughts and beliefs about pain interfere with activity engagement.

This is such a new area of measurement – and what I think it starts to unpack are the underlying variables that influence that final outcome, the one we’re all looking for: increased activity and participation in life.  I’m sure there will be much more activity in this area of research into pain management in the next few years than we’ve seen before.

Wicksell, R., Lekander, M., Sorjonen, K., & Olsson, G. (2010). The Psychological Inflexibility in Pain Scale (PIPS) – Statistical properties and model fit of an instrument to assess change processes in pain related disability European Journal of Pain, 14 (7), 7710-2147483647 DOI: 10.1016/j.ejpain.2009.11.015



McCracken LM, Vowles KE, Eccleston C. Acceptance of chronic pain: component
analysis and a revised assessment method. Pain 2004;107(1–2):159–66.

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Behavior change telemedicine

August 31st, 2010 by admin

Is “distance learning” effective in promoting healthy behaviors? Few answers are in yet, but plenty of people are asking the question in a systematic fashion.

A recent systematic review of telemedicine studies found a small but significant effect of Internet-based efforts on “patient empowerment.” (The report appears in the Journal of Medical Internet Research.)

And a telemedicine program in rural South Carolina brought about lasting improvement in self-management among diabetes patients.

A survey about telehealth by Intel found that most health professionals use remote care in some fashion. But there are issues with reimbursement, according to Medical Economics.

Watch for more to come. According to searches on “behavior change telemedicine” in the Clinical Trials article category on SearchMedica, studies are under way testing telemedicine for smoking cessation, post traumatic stress disorder, chronic pain, hypertension, ADHD, and much more.

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Canadian study shows relief for chronic neuropathic pain

August 31st, 2010 by admin

There’s now more scientific evidence for what many patients have known for awhile: Smoking marijuana can ease chronic neuropathic pain and help patients sleep better, according to a team of researchers in Montreal.
The new study, published Monday in the Canadian Medical Association Journal, found that pain intensity among patients decreased with higher-potency marijuana, reports Caroline Alphonso of The Globe and Mail. The study represents an important scientific attempt to determine the medicinal benefits of cannabis.

Patients suffering from neuropathic pain often use opioid pain medication, antidepressants and local anesthetics, but all of those drugs have limitations, and the side effects of these substances can rival the conditions they are supposed to treat. Unlike “normal” pain, which results from stimulation of pain receptors in the body, neuropathic pain results from damage to or dysfunction of the central or peripheral nervous system, reports Deborah Mitchell at EmaxHealth. Read the rest of this entry »

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Think You Are The Only One Crying About Your Illness? Jesus Weeps Too

August 31st, 2010 by admin

“Jesus wept.” (John 11:35)

Before Jesus wept, the previous verses tell us that Jesus saw Mary, the sister of Lazarus, and those who were with her weeping, and He was deeply moved and troubled. We know that Jesus was not weeping for Lazarus, for He knew that within minutes Lazarus would no longer be dead.

Jesus would raise Lazarus from death, bringing him back into the world of the living. Jesus was weeping because of the suffering of Mary and her companions.

That very short verse of “Jesus wept” brings me great comfort, because it tells me that Jesus is moved by our suffering and pain, even to the point of tears. Consider that for a moment: Jesus sees our suffering and is deeply moved by it. Can you imagine Jesus weeping because of your suffering?

I don’t believe that Jesus is on a continual crying jag in heaven, but I am comforted with the fact that He is moved to compassion by what we suffer and endure on this earth. I am convinced that Jesus sees our suffering and that He cares what happens to us. He sent His Holy Spirit to comfort us in our troubles, and He lives in us through His Spirit. Yes, Jesus knows what you are going through, and He cares that you suffer and are in pain.

The next time you find yourself suffering, enduring some terrible sorrow, picture Jesus, two thousand years ago at a graveside, surrounded by people suffering terrible grief, He loved them so much that He wept with them, suffered with them, even though He knew within minutes tears of grief would be changed to tears of joy.

Someday our tears of heartache will turn to tears of joy at our own graveside leading not to death, but to eternal life. Meanwhile Jesus sorrows with us, He knows the depth of our grief and suffering, and it matters to Him, it affects Him, but joy is coming soon.

Prayer: Dear Lord, You count our tears, You know our grief and suffering, thank You that our pain and suffering matters to You. Help us not to forget that joy is coming. Amen.

About the Author:
Karlton Douglas has Chronic Fatigue Syndrome and Crohn’s Disease, and he takes great comfort in the compassion and love of Jesus through his affliction
.

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Calif. doctor linked to six-plus deaths involving OxyContin

August 31st, 2010 by admin

State officials in California are pressing to revoke the license of a doctor linked to several fatalities due to overdoses of prescription narcotics including OxyContin, hydrocodone and Xanax. An article in The Los Angeles Times reports that at least six men have died of overdoses after visiting general practitioner Lisa Tseng, some of whom were known addicts. According to the Associated Press, in addition to misconduct charges from the Osteopathic Medical Board of California, Tseng faces an investigation by the U.S. Drug Enforcement Administration into her prescribing practices.

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Officials move to strip Calif. doctor of license

August 31st, 2010 by admin

A California doctor is about to have her medical license revoked by the state of California.  The do

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Seasonal Affective Disorder, again

August 31st, 2010 by admin

I don’t mean this post to be negative, but it will be.  I’m writing about some personal things with the hope that someone out there may find something useful in my experience. (I promise, in my next post I’ll share a couple of awesome bird pictures I got on our last kayak outing, so come back for that, ok?)

Over the past several winters here in Michigan, I’ve been experiencing increasingly severe seasonal affective disorder (S.A.D.).  I’ve dealt with it by escaping down to Savannah, Georgia, for a few days each spring. But that’s reactive rather than proactive, and now that I’m already starting to feel the effects of it as our days grow shorter this year, I’ve decided to be proactive about how I deal with it this year. I just ordered a light box and am hoping I’m one of those people who experiences life-changing benefits from the light therapy. Fingers crossed… I just can’t bear the thought of feeling crappy for the next 6 months.

Today was a pretty bad day for me — I spent the whole day in and out of bed, unable to even get myself motivated to get a shower.  This was partly because of my chronic lower back pain and partly because of too much time spent watching cable news (more on that particular problem below).  I’m making an appointment with a chiropractor tomorrow, hoping that will help my back.  Having this pain every day has become unbearable. I know I should have gone to a doctor years ago about it, but I let it go on and just continued to use my microwave heating pad multiple times a day to ease the worst of it. But it’s got to stop. I’m sure that having chronic back pain has contributed to my depression in the winter, and even this summer it’s made my life miserable. Some days the pain is so bad that I can barely move my hips, making it uncomfortable to sit or stand or even to lie down. I wouldn’t wish it on anyone.

As for the cable news addiction…I noticed after 9/11/2001 that I was spending more time every day watching the news, but I thought it was a short-term reaction to the scary events of that day. But over the years since then I’ve continued to spend hours a day flipping between the major cable news channels, often noticing that the bad news has negative effects on my mood.  The news over the past couple of years has gotten worse, from disasters like Katrina and Pakistan to the economy and political extremists. So today I googled “addicted to cable news” and found a blog post by a guy who broke his addiction to cable news. He lists the positive changes to his life that resulted, including an optimistic outlook and positive conversations with others.  I’ve toyed with the idea a couple times recently, but today I’ve decided to go ahead and give up the news cold-turkey. No more MSNBC or CNN for me.  It’ll be harder to give up Brian Williams, but I think it’s necessary.

I’ve always rationalized my need for the news as a way of being a responsible citizen, of keeping myself informed.  And I still believe that, but I think I can use the web to get the information I need while filtering out the murders, animal cruelty cases, and other violent stories. It will probably take some time to figure out the right balance for my online news reading too, but at least I’ll have more control over what I’m exposed to.

And to reinforce my commitment to avoiding bad news, I’m going to pay more attention to the Good News Network. If you haven’t seen it before, it’s just what it sounds like: a website that gives you positive, uplifting news rather than the negative and fear-inducing stuff fed to us by other news outlets. I’ve been subscribed to their Facebook feed for a couple months now and really enjoy the stories they publish. I highly recommend them if you feel the way I do about the overwhelmingly negative news.

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Graded exposure in the real world

August 30th, 2010 by admin

Well, not exactly the real world – yet – just the clinic.

A man I’m working with is very worried about his back.  Some years ago he had a discectomy and his surgeon told him he needed to be ‘very careful’ with his back – and so he has.  No bending, twisting, lifting for this man!  He’s given up some of his favourite things like fishing and whitebaiting and even golf because of this worry, although when I talk things through with him he’s not exactly sure what might happen if he ‘disobeyed’.

Let’s call him Matt for wont of a better name (and yes, as usual, details have been changed to ensure confidentiality), and he’s a fairly ‘blokey’ man who loved his fishing, diving, and taking off for days in his converted bus with his partner.  He’s just recently hurt his knee in a fall, and although the knee has been slow to recover, he’s now on the mend – but his back pain has become much worse.

Matt’s previous back problem involved a large disc prolapse, compression of the nerve root, and radicular pain radiating down his left leg.  After his surgery, the leg pain completely went but as often happens, he was left with slight low back pain.  Matt told me he could usually manage this and it didn’t bother him because he was ‘very careful’ with his back.  When he said ‘very careful’ what he meant was he’d stopped all those things he’d enjoyed and when he got pain he immediately thought of what his surgeon had said, and worried that maybe his back was ‘under stress’ and he might have a recurrence of that pain that he had experienced before.

While his knee is settling down, Matt’s back pain has increased – and to cap it off, he’s now got pain in all his joints.  Matt’s not one to visit the doctor unless he ‘has’ to, and he hasn’t mentioned this widespread pain to his doctor – and his fear was that this pain ‘must be’ rheumatoid arthritis.  He doesn’t have any RA in his family, but his understanding was that RA is something that affects every joint, it’s progressive and certain to mean he will be crippled (his words).

I guess we could say that Matt is a man with health anxiety, and more specifically, pain anxiety – and kinesiophobia.

Matt’s worry about his back pain has lead him to see his GP to get an MRI to ‘find the cause’ of his increased pain, and to ‘get it fixed’.  Unfortunately, even though he hasn’t any specific signs to suggest the need for an MRI, he’s been referred for one (see my previous posts on ‘is reassurance reassuring’!).

I spent a while discussing the possible outcomes of the MRI with Matt.  Maybe there will be a clear anatomical change that will account for his back pain and a clear surgical solution.  Maybe there will be a slight anatomical change but no surgical solution.  Maybe there will be no anatomical change at all.  What will he do?

I should add at this stage that Matt and I spent quite a while with one of our doctors looking at his previous surgery and the possible explanations for his increased back pain.  Even though he had a clear explanation, his questions were answered and he has had a good response to medication suggesting that the pain is most likely due to central sensitisation, Matt is not convinced he should change his practice of avoiding movements involving his back.

At our session, Matt and I discussed the effect of his avoidance strategy.  He’s aware that it’s not working for him, and that it means he has given up many of the things he really enjoys – but at the same time, to him the risk of ‘doing damage’ is far too high. So I suggested to him that we go through a set of photographs (the PHODA) to look at exactly which movements and activities he felt he shouldn’t do – and would avoid.

Together we sorted through the 100 photographs of people doing everyday activities.  He sorted them into two piles – one that he would do reasonably happily, and the other of things he wouldn’t do.  Sixty seven of the photographs were sorted into the pile of things he wouldn’t do. Things like carrying a load of washing, picking up a planter pot, pushing a wheelbarrow, twisting to reach for a book, reaching above his head to retrieve a box from the top shelf…

Things he would do included some activities that looked very similar to the ones he wouldn’t do. For example, he wouldn’t bend over to pick up a pair of shoes from the floor – but he would reach across a bed to pull the duvet up.  He wouldn’t reach across a table to pick up a book, but he would reach forward to prune a rosebush.  In both of these cases the postures he adopted were the same but for Matt, there were clear ‘reasons’ one movement was fine, and another was not.

He and I have agreed to develop a hierarchy of these avoided activities. We’ll put the photographs in order from least bothersome to most avoided.  And we’ve agreed to work through each activity and firstly identify what it is about the activity that concerns Matt.  Then I’ll show him how I’d do the movement, and he will attempt to do it the same way.  I’ll ask him to rate his level of concern out of 10, and to rate the likelihood that what he fears will happen out of 10.  Then he’ll do the movement, and repeat the measures.

What we’re trying to do is test his hypothesis that these movements are going to do what he fears. It seems that although he’s concerned that he might ‘damage’ his back, the cue that he uses is his pain level – and he is not happy about fluctuations in his pain, both because it might mean his back is ‘getting worse’, but also because he is fearful that he won’t be able to ‘handle’ the pain (remember he’s usually a pretty staunch and blokey man).  He’s got a few theories about how his back works, but readily acknowledges that he doesn’t really know all that much about his spine, just what his surgeon has told him.

I’ll keep you updated on Matt’s progress as we work through this exposure activity.  I think this is a great opportunity to help Matt learn both about his body, and that he can cope with fluctuations of pain.  I’ll be listening carefully to what he thinks is going on, so I can set up ‘experiments’ that we can do together (at least initially) to test out whether his hypothesis is correct.  Matt seems satisfied that I’ll be ‘doing the worrying’ for him, and that he’ll be doing the activities in our environment.  My plan is that once we’ve managed it in the clinic, he will feel confident enough to practice the same activity at home.

For some more details on the graded exposure process and the theory behind it, here are several papers:

Wicksell, Rikard K; Ahlqvist, Josefin; Bring, Annika; Melin, Lennart; Olsson, Gunnar L. Can exposure and acceptance strategies improve functioning and life satisfaction in people with chronic pain and whiplash-associated disorders (WAD)? A randomized controlled trial. Cognitive Behaviour Therapy. Vol.37(3), Sep 2008, pp. 1-14.

Linton, Steven J; Boersma, Katja; Jansson, Markus; Overmeer, Thomas; Lindblom, Karin; Vlaeyen, Johan W. S. A randomized controlled trial of exposure in vivo for patients with spinal pain reporting fear of work-related activities. European Journal of Pain. Vol.12(6), Aug 2008, pp. 722-730.
Vlaeyen, Johan W. S; de Jong, Jeroen; Sieben, Judith; Crombez, Geert. Graded exposure in vivo for pain-related fear. Turk, Dennis C [Ed]; Gatchel, Robert J [Ed]. (2002). Psychological approaches to pain management: A practitioner’s handbook (2nd ed.). (pp. 210-233). xviii, 590 pp. New York, NY, US: Guilford Press; US.

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